WTF it’s MESH !?!

/WTF it’s MESH !?!
WTF it’s MESH !?!2018-11-22T19:09:13+10:00

I can’t believe it..

It can be a real shock to discover you are mesh injured. In can also be a relief to realise you are not going crazy and there is a cause of your pain and illness….

Being adversely affected from a surgical medical device is traumatic, especially if you have been unwell or in pain for some time now with no reasonable explanation, or worse, referred to a psychiatrist as the medical profession couldn’t work out was was actually wrong with you, with the message “it’s all in your head”…

It can be helpful to know that there are others are in the same boat and that we are not alone. We urge our members to reach out to others in support groups around Australia.

The conflicting emotions of such a predicament we find ourselves in can be a real struggle.  We have experienced a big loss.  A loss of health, normal life as we knew it, our jobs/income perhaps, friends who couldn’t empathise with our ill health or understand our pain and some have lost partners who they could no longer be intimate with… There are often a great many losses we have suffered involuntarily.

Stages of grief  

Grief and loss are experienced by everyone in all walks of life.  We all grieve differently, some outwardly and others more privately. It is often a deeply personal experience, with no road map or compass.

Denial

If you are reading this it is possible you have been in this isolating stage, through no fault of your own.  This stage acts as a buffer for the shock and harsh reality of our situation.  Moving through the pages on our website can help you tackle this stage by getting educated  (First step) and empowered through knowledge of your implant and the necessary steps to take next, like reporting your adverse effects to the TGA (Therapeutic Goods Association who record these things for Government agencies).  Denial is that feeling of shock and disbelief, it is like living in 2 worlds, the one that holds the truth and the other that is struggling to believe it, “is this really happening to me?”. We strongly urge you to be kind to yourself as you have suffered enough.

Anger

This can be a very uncomfortable emotion for most of us. Many of us will not have witnessed this potent emotion expressed in a positive way in our lives before. Women especially struggle with anger and bearing witness to it.

“How did this happen?…. Who is to blame?”.

Our members report differing feelings, some blame themselves and others experience rage at their implanting surgeon or the government and regulatory bodies “they should have known and stopped this from happening”.  Feelings of outrage and anger are normal and a necessary stage of the healing process, we can utilise our anger to get stuff done and make any necessary complaints to advocate for ourselves moving forward. Anger often brings change and with it the energy to keep going and moving forward.

Depression

Sometimes sadness can be overwhelming and all-consuming and a normal response to loss.  Chronic illness and pain can erode what little sense of self we have left, coupled with the shock of what our futures may look like.  We can feel despondent, helpless and hopeless.  You do not have to suffer alone, we encourage you to reach out, talking to supportive people can really help.  If this stage persists please speak to your GP or a trusted health care professional, it helps to understand that this is a normal reaction and there are options such as medication, counselling and life style changes you may be able to make.

Bargaining

This can be a “why did I do this?” of “If only I hadn’t had this implant” stage in our recovery, “If I had been a better person this may not have happened to me”.  This is often accompanied by feelings of guilt for ending up here. Well, we all had these surgeries, so you are not alone.  We urge you to be mindful that you are one of potentially thousands of men and women in Australia alone.  There are reports from the USA, Europe and most developed countries of people suffering from mesh injury.  This is the time to get educated, look at your options for recovery and start to heal, where possible.

Acceptance

This is the stage of grief where we realise the full impact of our loss.  The final stage of knowing where we are, what has happened and what we need to do to pick up the pieces.  These stages of grief are fluid and can repeat, it does not mean we are going backwards, it highlights our journey and where we are and what we need for ourselves in order to heal.


Reach out for support

Understanding the emotional journey we are on can give us tools and skills to draw on, it equips us for the ups and downs of this stage in our life.  We may reflect back to other times in our lives when we faced adversity and be able to remember what or maybe who got us through that. When grief and loss are acknowledged we can move through the differing stages in order to heal.

All this being said, we urge you to connect with others in the same boat and speak to a mental health care professional for support with your feelings if they become overwhelming, some members report finding someone that is a good listener and has dealt with trauma can be very useful, for assistance finding someone you can go to:-

https://www.theaca.net.au/find-registered-counsellor.php

http://www.pacfa.org.au/

Or see your GP for a referral to someone they recommend:

https://www.healthdirect.gov.au/mental-health-care-plan

Other mental health services

If you have concerns about your mental health, you can also contact one of the free counselling services such as:

Reach out for support…

“Closed” facebook groups where you will need to request to join:

Australian Mesh Injured Support Group (Closed Group)

UK Sling the Mesh Campaign (Closed Group)

“Public” facebook groups where anyone can read information publicly:

Mesh Injured Australia Incorporated Public Facebook Page

NZ Mesh Down Under Public Facebook Page

Please contact us on support@meshinjuredaustralia.org.au if you have any questions or wish for your group and link to be listed here. Global applications are welcome.

Reach out for support…

“Closed” facebook groups where you will need to request to join:

Australian Mesh Injured Support Group (Closed Group)

UK Sling the Mesh Campaign (Closed Group)

“Public” facebook groups where anyone can read information publicly:

Mesh Injured Australia Incorporated Public Facebook Page

NZ Mesh Down Under Public Facebook Page

Mesh Awareness Australia Public Facebook Page

Please contact us on support@meshinjuredaustralia.org.au if you have any questions or wish for your group and link to be listed here.

Global applications are welcome.

Documentary

For more information on adverse effects from a surgical device we suggest watching The Bleeding Edge documentary on Netflix:-

Click here to view the Bleeding Edge documentary trailer via youtube: (https://www.youtube.com/watch?v=slmilObZl28)

Click here to view the Bleeding Edge via Netflix

If you aren’t already subscribed to Netflix, you may wish to sign up an account and download the app on your tv, phone or tablet.